Patient Advocacy

As nurses, we have long accepted that part of our professional role is to act as a patient advocate. Considering the fact we are the only professionals who are with patients 24 hours a day, 7 days a week, we obviously are well-suited for this role. In addition, our knowledge and skills in patient education allow us to effectively "translate" information about medical diagnoses, procedures and medications into language patients can understand and use.

Nurses are well-informed and well-educated, and we are passionate about the well-being of our patients. All of these factors drive us to advocate for our patients. But for many nurses, their concept of advocacy ends at the bedside of an individual patient - and that's too bad. Those same skills that serve us well as patient advocates at an individual level also can be used at the community or public health level. When nurses can go to that level, real change can occur.

As a patient advocate, you have an individual responsibility, but you may have more clout if you approach an issue as a group. Being effective, however, requires more than just passion and knowledge. Specific strategies and organizational and communication skills will enhance your effectiveness and opportunities for success. This article reviews the role of the nurse as an advocate beyond the bedside, and provides suggestions for techniques you can put to work in your expanded role of patient and health advocate.

Why Be an Advocate?

Advocacy, whether at an individual or broad level, involves one person or group speaking on behalf of a patient or cause. Why do nurses get involved in advocacy activities? In general, people become advocates because they believe in an issue and see a need for change - whether it be for a family, school, community or state. Health advocacy involves issues relating to public health, such as smoking, domestic violence or air pollution. By being advocates, nurses can effect change that, in the long run, will make it easier for people to be healthy.

When nurses take on public health advocacy roles, it benefits the profession, too. Many people do not understand and appreciate the vast knowledge and skills nurses possess. By taking a leadership role in a visible way - as part of a public health campaign, for example - nurses do more than "talk the talk." Nurses are held in high esteem and trusted by the public. In an advocacy role, nurses are seen as active and constructive, which in turn can help improve nursing's image. Given the ongoing nursing shortage, every action that shines a positive light on our profession is beneficial.1

Barriers to Advocacy

Many people shy away from advocacy activities because they believe participation requires a great deal of time and energy. While that may be true in some cases, it is easy to start small. If your time is limited, you still can be involved. Advocacy can be something as quick as sending an e-mail to a legislator. When written effectively, a two-sentence e-mail can make an impact and the time investment is minimal.

Another common barrier is believing it is impossible to make a difference. To counter that, remember this quote from Margaret Mead: "Never believe that a few caring people can't change the world. For, indeed, that's all who ever have." There is evidence advocacy initiatives have had tremendous influence on policies related to tobacco control and lead poisoning, to name just two.2,3 Your efforts are important and taking action can make a difference. This bit of insight from the staff at the Health Advocacy ToolBox speaks volumes: "Three or four calls to a state senator on an issue is an avalanche."4

Another fear - and this one is realistic - is employment-related repercussions. You need to carefully draw the line between what you can do as a private citizen and what you can and cannot do as an employee of an agency.

As a citizen, you have the right to vote, lobby and campaign, whether it be for an individual running for office or a policy or law you hope to see passed. However, keep in mind you run the risk of displeasing an employer if you publicly advocate for a position not congruent with your employer's interests.

To minimize risks, make it clear you are advocating for your personal opinion. Do not use your official title from your job when you are advocating for yourself; that is unethical and foolish.5 Do not use work resources to advocate. Instead, make phone calls from home and use a personal e-mail account and computer to send messages.

To share contact information with others, create a set of personal business cards. While you may opt to have them professionally printed, you also can make a perfectly acceptable set with a computer, printer and package of pre-perforated business card stock. If campaigning for a candidate or issue, check with your employer to see if they have any policies against wearing campaign buttons while on the job. If so, leave them at home.

Depending on the group with which you are affiliated, there may be more stringent rules you should follow. For example, government employees are prohibited from engaging in advocacy activities during work time and using government equipment and materials, including all government-owned communication channels. Likewise, federal law has restrictions on lobbying initiatives by nonprofit organizations; nonprofits also are banned from electioneering activities.

Keep in mind many professional associations, such as the Oncology Nursing Society and the Hospice and Palliative Nurses Association, are nonprofit organizations. If you are a member of such a group, whether at the local or national level, you need to be very clear about your advocacy efforts as an individual versus a member of a professional association.

Only use an association's logo or letterhead when acting in an authorized role as a representative of the association. There have been cases where an individual's actions on behalf of a nonprofit crossed the line on lobbying and, as a result, jeopardized the nonprofit status of the organization. Make sure to keep the executive director informed about your activities, both verbally and by providing copies of letters, e-mails and all other relevant documents.

Along the same lines, many nurses wonder if they should use "RN" after their name, for example, in a letter to the editor of a newspaper. My take is that it is your credential - you have earned it - so it is yours to include or not. Personally, I include RN when writing about health and nursing issues; I leave it off for other topics.

Taking the Steps to Advocacy

As noted earlier, being an advocate does not always require large investments of time and energy. At the most basic level, being an informed citizen and voting in elections are advocacy activities. However, for the purpose of this discussion, we are taking a broader view. With that in mind, how do you get started?

In general, most advocacy efforts begin with an issue. The issue usually presents itself to you, rather than you searching for it.

 Ruth Malone, PhD, RN, founded the Nightingales (see sidebar) after she read hundreds of letters sent to tobacco companies from dying customers and their grieving families. She said, "I cried, sitting at my computer. I felt these letters must be heard."6

 The Susan G. Komen Breast Cancer Foundation has raised more than $740 million for breast cancer research and community outreach since its founding in 1982 by Nancy Goodman Brinker, Susan Komen's sister, after Komen died of breast cancer at age 36.

 I became an advocate in 2000, when I spent time and money to oppose the citizen-initiated Death With Dignity Act on the ballot in Maine. This referendum, which would have legalized physician-assisted suicide, was in opposition to my beliefs as a private citizen and a nurse. In the months leading up to the election, I wrote letters and editorials, spoke on call-in radio and television shows, and testified before the legislature. It definitely was a crash course in advocacy!

With an issue clarified, you might be wise to check if a group has been formed to advocate for the cause. While it certainly is possible to engage in individual advocacy efforts, the strength of a group or coalition will do more to bring the issue to the forefront of attention. "Working in coalition" was cited by Grace Damio, an advocate and director of maternal and child health and nutrition at the Hispanic Health Council, a community clinic in Hartford, CT, as key to her effectiveness.7

Of course, a group may not exist, and that may be where you need to begin. For example, the Center for Nursing Advocacy (www.nursingadvocacy.org) was founded by a group of graduate students at Johns Hopkins University School of Nursing in April 2001. They came together after a member suggested they form a group to help address the growing nursing shortage, which they felt was caused in part by inadequate understanding of and support for the profession. From that simple start, close to 500 nurses have signed on and provided financial support and have engaged in advocacy activities including several letter-writing campaigns and boycotts.

Keep your focus in mind. Some issues are time-limited, such as a referendum on a ballot that will be decided at election. Put your time and energy to the activities that will make the most difference, both in the short- and long-term.


Patient Advocacy

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Hi, doing a paper for school regarding nurse advocacy. having trouble locating any new york state laws regarding this issue? do you know of any in legislature currently? or now in place?
Thanks so much,
Nancy

nancy sheehan,  rn,  hospitalOctober 02, 2011
farmingdale, NY




     

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