The Robbinsdale Specialty Care Community, a 96-bed facility, opened with one-third of its beds reserved for patients with Huntington's disease.
Owned and operated by the Evangelical Lutheran Good Samaritan Society, it is one of only eight residential communities in the United States with dedicated care and programs for people with Huntington's disease.
According to the facility, approximately 56 percent of our Huntington's disease residents are women, and our average age is 39. By contrast, the average nursing home resident is a woman age 87. The younger a person is when diagnosed with Huntington's disease, the faster the disease seems to progress. The average age at onset is between 30 and 50. It can result in long-term financial drain.
The new facility at 3815 West Broadway in Robbinsdale was completed in November 2012 and replaces a 40-year-old facility in Minneapolis. "
In the new Robbinsdale Specialty Care Community, individuals have private living space. Stainless steel toilets replace more easily breakable porcelain fixtures. Chairs are built to withstand the added stress of persons with movement disorders. Dieticians prepare meals for individuals who may require up to 10,000 calories a day to compensate for the workout they get from their constant movements. Some of the beds are on the floor to make it easier for residents, and there is a Snoezelen room to help individuals manage the behavioral side effects of Huntington's disease.
The new building also features a fitness center, rooftop garden, chapel with unique stained glass windows and expanded outdoor green spaces. It was built with energy-saving features, such as geothermal heating and cooling, sensor and energy-efficient lighting and individual room temperature controls. The Specialty Care Community provides inpatient and outpatient rehabilitation services, specialty care services and home services.